Think about what the risks are to your dissemination plan e.g. More advice on dissemination. Dissemination of evidence in nursing is the spreading of evidence-based knowledge, research, and findings by nurses to other healthcare professionals or to the general public. DISSEMINATION OF FINDINGS: PRESENTATIONS AND PUBLICATIONS Anne Walling, MB, ChB Professor Terry Ast Research Analyst Department of Family and Community Medicine The University of Kansas School of Medicine-Wichita (316) 293-2607 awalling@kumc.edu tast@kumc.edu Create an Effective Brochure, Publishing project findings in national journals and statewide publications, Presenting at national conferences and meetings of professional associations, Presenting program results to local community groups and other local stakeholders, Creating and distributing program materials, such as flyers, guides, pamphlets and DVDs, Creating toolkits of training materials and curricula for other communities, Sharing information through social media or on an organization's website, Summarizing findings in progress reports for funders, Disseminating information on an organization's website, Discussing project activities on the local radio, Publishing information in the local newspaper, Hosting health promotion events at health fairs and school functions, Using the 2-1-1 system to publicize available services and resources, Submitting information about a rural health project to be included in the Rural Health Information Hub's, State associations of county and city health officials. The peer-reviewed and grey literature was systematically reviewed to understand … 5.2.1    Produce setup files and ready-to-use ‘portable’ files in SAS, SPSS, and Stata to address the needs of those who seek to do intensive statistical analyses with particular software packages. 1.6     Master copies of all important Living Standard Measurement Survey (LSMS) files are kept in a separate, backed-up archive. strategies for rural programs partnering with philanthropies. It involves the documentation of major steps in the data lifecycle, from initial planning to the production of final data files. This guideline is based on the guidelines written by the Community Advisory Board of the University of California San Francisco Center for AIDS Prevention Studies (CAB CAPS), and is adapted for the 3MC context . 1.2     Identify any documents that should be published in their original language, such as individual country questionnaires, codes, verbatim responses, and nation-specific data files. Research may also be misused to cause More advice on dissemination. Dissemination of data is a critical step in completion of any research study. DHS also provides a step-by-step introduction to using DHS data, a tabulation plan, and many other resources for analyzing DHS data. 10. These are not always as visible to researchers, however, as they might not possess immediately obvious substantive or methodological interest. The materials that need to be preserved and kept available to members of the research community include such objects as public-use data and documentation files (including key files used in their construction), copies of the data collection instruments, user guides, information about the data collection process, and reports on field operations. These studies illustrate the value of using these standards, such as: 8.1     Many 3MC studies provide extensive documentation online. name and address). 7.5     Track all user questions in a database that creates an accumulating knowledge base and that can also serve to generate frequently asked questions (FAQs). This includes, when available and appropriate, detailed information about the survey process (paradata), all data editing steps, and protocols that determine which types of data and documentation files are made available to which users. 7.1     In order for participants to fully benefit from the experience, training programs must be well-planned, with a high level of substantive, methodological, and technical expertise. 2.1     The requires data to be archived for a minimum of 10 years as part of its anti-fraud activities. Clear procedures must be in place to make certain all files remain readable as statistical and word processing software systems change over time. info@ruralhealthinfo.org. 5.3     ‘Don’t know’/’can’t choose’ responses may have different meanings in different countries based on different response styles. However, the implementation varies across countries and research funders. Users should be able to follow the changes made from one version to the next. In this context, there is no real substitute for intensive training and ongoing user support. The Agency for Healthcare Research and Quality (AHRQ) Effective Healthcare (EHC) Program funds individual researchers, research centers, and academic organizations to work with AHRQ to produce effectiveness and comparative effectiveness research for clinicians and consumers.1 Comparative effectiveness research (CER) compares the benefits, harms, and effectiveness of health interventions for the prevention, diagnosis, treatment, and management of clinical conditions and the improvement of he… Although focused on microeconomic data, the , for example, established a set of guidelines on macroeconomic data for member countries to follow in order to provide the public with “comprehensive, timely, accessible, and reliable economic, financial, and socio-demographic data” . 8.5.5    There are many examples of projects that utilize DDI-compliant metadata, both at the individual study level and in multi-study data repositories . An effective data processing strategy focuses on the production of data files that will provide optimal utility for researchers. Standards should be developed with researchers to ensure they meet the needs of the relevant discipline . Trusted Repository Audit Checklist (TRAC), Trusted Digital Repository Checklist (TDR), Survey of Health, Ageing, and Retirement in Europe (SHARE), Complying with the Open Archival Information System (OAIS) in the U.S. and similar standards in other countries which have their own digital preservation standards and practices. A tool that can be used to frame the objectives for dissemination, which will guide the materials that need to be created and the method of dissemination. Two metrics are the Trusted Repository Audit Checklist (TRAC) and the Trusted Digital Repository Checklist (TDR), or ISO 16363 . Review: Answers 1-2 . Does your research contain sensitive or protected data? 5.4.6    The World Values Survey provides data only to participating countries for a period of two years after fieldwork has been completed; after this period, the data are made available to the worldwide social science community in the form of data archives. 2. Hard copies are acceptable where circumstances (e.g., cost) prevent scanning. 9.1.3    Get input from study participants, community representatives, and other potentially interested parties on the preferred forum for viewing findings, such as press releases, websites, newsletters, or conferences. Research, especially where reported in a preliminary or incomplete form or to a lay audience, may be liable to misinterpretation. There are many reasons to share data from NIH-supported studies. 2. Dissemination refers to “a planned process that involves consideration of target audiences and the settings in which research findings are to be received and, where appropriate, communicating and interacting with wider policy and…service audiences in ways that will facilitate research uptake in decision-making processes and practice” (Wilson, Petticrew, Calnan, & Natareth, … 1.3     The Demographic and Health Surveys Program (DHS) provides ‘standard recode’ datasets to users. In this blog post we share four creative methods of research dissemination. Many search engines have the ability to set up ‘alerts’ that notify a user when new items are found based on a query. Advances in Patient Safety: From Research to Implementation. Organization(s): Agency for Healthcare Research and Quality An ideal preservation storage situation includes a minimum of several offsite copies of digital materials undergoing regularly scheduled backups. Usage. 7.8     While all of these procedures can increase the effective use of 3MC datasets, each country must decide on which steps would be most beneficial for their own research communities. It is designed to help you to plan your dissemination and give your research every chance of being utilised. This allows for the identification of areas or variables that need to be further masked in order to prevent identification of subjects, either through analysis or by matching study data with data from other external databases. Consider offering multiple venues, if possible. Preserve sustainable copies of all key data and documentation files produced during the data collection process, as well as those made available for secondary analyses. There are a variety of methods that can be utilized which rely on centralized depository. 1.5     Documentation of  survey methods and data files is sent to a central data archive no later than nine months after fieldwork is completed. In addition, provide data in a non-proprietary format so that users may utilize the statistical package of their choice. 4.2     Remain cognizant of any copyright restrictions the data may have. Data are to be sent unweighted, but descriptions of weighting procedures should accompany the datasets. Write any information disseminated in accessible language, and keep in mind the literacy and language needs of the study population. 5.5     Make a thorough investigation of any undocumented codes or inconsistent responses, and whenever possible, provide labels such as ‘not ascertained’ if there is no alternative. Individual countries may have different dictates on sharing data within and between countries. 5.4     Consider creating simplified versions of datasets for use by the wider public, such as journalists and policymakers (i.e., by creating recode variables, such as age of respondents in groups or income in groups; removing detailed information such as household lists; setting missing data properly; etc.). 4. 7. The Guide was developed based on the experiences of many health agencies in disseminating their data, and attempts to establish a set of general standards and practices. The publication and dissemination of research can sometimes have unintended consequences on individuals and communities. [1] [2] There are many ways organisations can release data to the public, i.e. 1.4     All documents related to each round of the are uploaded to a server. 3.2     Disclosures can be categorized as either identity disclosure or attribute disclosure . [Internet]. 9.1     Traditionally, researchers disseminate work in peer-reviewed journals. We want to ensure that the research we fund has the maximum benefit for patients, the public and the NHS. Some examples of dissemination strategies are below. Toolkit, Care Coordination The in the United States provide the following justification for their emphasis on dissemination: “data sharing promotes many goals of the NIH research endeavor. Encourage participation. 2.1     Define the long-term preservation standards and protocols to be used. However, practitioners, as well as the general public, rarely have the time, or even ability, to read these types of articles. Tool 5.3     Format the data files in a way that permits access through a wide variety of statistical packages, all of which will produce the same results no matter how complicated the analysis requested, particularly with any variable where decimal precision is an important consideration. In the age of open research, don’t just broadcast. Users should learn about specific issues involved in data collected in their own countries, as well as how comparable the data collection experience was in other countries. Managing the hardware, software, and storage media components of the digital preservation function in accordance with environmental standards. 3.2     A 2011 experiment used individual-level reoffending and sentencing data in the UK to demonstrate the possibility of disclosure prior to public release. For dissemination considerations for specific types of programs, see: The Rural Philanthropy Toolkit discusses dissemination Email: info@ruralhealthinfo.org, 1-800-270-1898 Dissemination is more than storing or archiving data. Make such datasets accessible via Web-analysis. Training and support of users will increase usage of the data and encourage comprehensive analyses. Produce data files that are easy for researchers to use. 10.1   Establish a quality compliance protocol: an overall plan for regularly monitoring the integrity and validity of all data and documentation files that are available for secondary use. 8.2     Update documentation continually during the entire lifecycle of the project, and preserve old versions of key files. Creative methods of research dissemination. 2.9.1    Such repositories make an explicit commitment to preserving digital information by: 2.10   If no national or public social science data archives exist, consider depositing data with an archive in another country, or investigate the possibility of doing so with a national statistical agency or certified provider. 1.1     For multi-lingual surveys, decide on the standard documentation language to be used. Given the large number of participants, and rich phenotypic data, we are eager to disseminate the data and project findings in an engaging, innovative manner. Organization(s): University of Nebraska Dissemination of research findings is becoming more important for scientists, since journals start to encourage them to invest extra effort in reaching wider audiences. 7.7     Establish moderated user forums to provide the foundation for an online community of researchers and students who can discuss their experiences using data and learn from each other. Impact activities and dissemination may therefore be ongoing throughout the research lifecycle (including these later stages) and members of research ethics committees should have the necessary skills and expertise to ask critical questions when assessing a proposal's impact and dissemination … 2.6     At a minimum, store a copy of all data and metadata files in software-independent formats (e.g., ASCII or XML) which, with proper accompanying documentation, can be read into all major statistical packages. Thus, foundations and public funders often ask for free data access (i.e., they deny the principal investigator’s sole ownership on collected data). 8.5     XML metadata markup offers opportunities for data producers to create their documentation, as well as several advantages to users of the documentation: 8.5.1    All information that the analyst needs is available in a core document, from which other products (such as text files that contain the necessary information to run statistical analyses in software programs) can be produced. Dissemination is the process by which producers of microdata from surveys and from public and official statistics make their data available to other users. The value of data depends on the quality of the data itself. The CAB CAPS guidelines were created by a committee of activists, teachers, and other stakeholders. 2.2     There are several digital preservation metrics that can be used to assess digital repositories. be created and the method of dissemination. Make a dissemination and data preservation plan that includes archiving, publishing, and distribution, early in the project lifecycle. 4.2     Most data are already paid for by taxpayer money or foundations. Consider how your dissemination might be perceived by different groups. 8.4     Consider adopting the standard for producing metadata. Developing a reliable, sustainable, and auditable digital preservation repository that has the flexibility to grow and expand. Dissemination Plan Template; Guide Background; Dissemination Plan Template What kinds of research findings do you want to share (data, videos, images, etc.)? Releases must be approved by a core partner. If general distribution is not feasible, establish clear rules under which researchers can obtain the data. 2. All rights reserved. Please contact us if you wish to publish any of this material in any form. In some settings, this may be just an SPSS portable file, but in others, data producers and/or archives might need to create the same file in a variety of formats, particularly if a standard database conversion package such as STAT-TRANSFER is not available. 8.5.4    Preparing documentation in DDI format at the outset of a project means that the documentation will also be suitable for archival deposit and preservation, because it will contain all of the information necessary to describe all aspects of the corresponding data files. Preserve sustainable copies of all key data and documentation files produced during the data collection process, as well as those made available for secondary analyses. The first step to promote your work successfully is to include disseminating results into your initial project planning. Presenting research findings, in addition to making the data files available to other users, is an important step in quality dissemination practices. The Community for Advancing Discovery Research in Education (CADRE), another NSF-funded resource center, has an excellent Dissemination Toolkit that provides tips for creating an overall project communication plan and a dissemination plan for select products. 4.7     Create special files for researchers that cannot be matched with public-use files (for example, provide finer grained local information and simultaneously change respondents’ IDs and other matching variables). The recode datasets contain the same data as the raw datasets, but in a standardized format where variable names and definitions are, wherever possible, consistent across all surveys. Sharing data reinforces open scientific inquiry, encourages diversity of analysis and opinion, promotes new research, makes possible the testing of new or alternative hypotheses and methods of analysis, supports studies on data collection methods and measurement, facilitates the education of new researchers, enables the exploration of topics not envisioned by the initial investigators, and permits the creation of new datasets when data from multiple sources are combined.” This policy has resulted in more data becoming available in the public domain. Treating all of these responses as missing data may lead to unwarranted conclusions about the attitudes of whole populations . Produce comprehensive documentation for all public- and restricted-use data files. 5.9     Consider producing ancillary files for those data collection efforts which cover multiple waves of respondents or several geographic areas. Preservation is an important part of the survey lifecycle, a prerequisite for long-term access to valuable physical objects and digital materials. 4.6     Distribute restricted files through signed data use agreements. intellectual property issues. 4.3     Despite general agreement on the advantages of making data accessible to other researchers, as well as strong data-sharing cultures in many nations, too few social science data collections are effectively preserved. Disclosure resulted from matching data to a local news website . If appropriate repositories are not available, producers may need to organize dissemination of their materials themselves. Organization(s): Agency for Healthcare Research and Quality 8.5.2    The XML file can be viewed with Web browsers and lends itself to Web display and navigation. 7.3.1    Without specialized instruction and training, analyses of cross-cultural longitudinal data and repeated cross-sectional data are particularly challenging. 4.5     Establish clear policies for how researchers may access restricted data files by creating a set of application materials and restricted-use data agreements that specify how researchers can obtain and use such data . Toolkit, Health Promotion and Disease The main elements of our framework are 1) a close partnership between researchers and a disseminating organiz… It is particularly important for unique data that cannot be readily replicated (see here). Creation and testing of the tool is described in Development of a Planning Tool to Guide Research Dissemination. Elicit immediate action, Promote Each national partner is responsible for entering and cleaning their own data and delivering a clean SPSS data set. 6.5     Encourage data archives to create metadata records for surveys they do not preserve and distribute these records to facilitate their discovery and use. In 1993, the Royal College of Psychiatrists' research unit undertook a … Consider the production of both public- and restricted-use data files. Invite and engage others … 8.2     Even though the amount of documentation that 3MC studies provide has increased in recent years, there is still a need to provide users with more information about the entire survey lifecycle, particularly through detailed quality profiles (see Survey Quality). Any plan to disseminate survey data must include very specific procedures for understanding and minimizing the risk of breaching the promise of confidentiality that is made to respondents at the time of data collection. Toolkit, Chronic Obstructive Pulmonary Disease Toolkit, Diabetes Prevention and Management 10.8   Produce and implement procedures to distribute restricted-use files if applicable. Goal: To ensure that survey and statistical research teams in all cultures and countries involved in a 3MC survey follow accepted standards for the long-term preservation and dissemination of data to the social science research community and the wider public. In doing so, data producers do their best to ensure that their data collections will remain available to the research community. DDI XML should ideally be generated by the CAI system used to collect data, but can also be collected from paper-and-pencil surveys through access to the information in the original questionnaire. 7.3.3    Provide the training materials online so that people who are unable to attend can still have access to the information. 9.2     The issues reports or bulletins within three months of the end of fieldwork. 1.3     Have a system in place to preserve all major planning and operational documents as soon as they are created. 1.11   More than ten years ago, the began to develop a set of dissemination standards “to guide countries in the provision to the public of comprehensive, timely, accessible, and reliable economic, financial, and socio-demographic data.” These standards were considered best practices, but their implementation was completely voluntary, depending on the policies and wishes of each nation. 1.2     Round 4 of the strongly recommends that participating countries scan their completed paper-and-pencil questionnaires. After a student is enrolled in the project, the student is sent an optional follow-up survey each spring. These procedures might include top- or bottom-coding of key demographic variables such as income, removing data for very sensitive variables, and swapping data values between similar cases . 2.4     Make certain that digital materials remain retrievable through constant refreshment of the media on which they are stored. Such files may include recoded variables to summarize information contained in many questions or special constructed variables that producers feel will aid researchers in their analyses. 2.8     Make test runs of copied data to ensure error-free copy processes. Dissemination can be powerful when adding rhetoric or other forms of persuasiveness to the speech. The intent is to spread information and the associated evidence-based interventions. 10.11 Discuss with users their experiences working with the data. 4.3     Provide access directly by the data producer if resources permit, but always send copies to a trusted digital repository for permanent preservation as well, in case the data producer should cease to provide access at some point in the future. Dissemination also requires the long-term availability of data and documentation files through constant updates to hardware and software and possible changes in management and staff. Dissemination Planning To ensure that the project results will be used, research projects must develop a dissemination plan that explains how the outcomes of the If it is not possible to store materials at multiple sites, preserve at least one copy in a different location. Conduct effective disclosure analysis to protect respondent confidentiality. A German elite study was nearly lost to the academic public due to heritage issues. 3.8     Use appropriate masking procedures to preserve respondent confidentiality while also trying to optimize the usefulness of the resultant data file for analysis. 8.5.3    Because the content of each field of the documentation is tagged, the documentation can serve as the foundation for extraction and analysis programs, search engines, and other software agents written to assist the research process. Disseminating research in journals t … This can be incorporated as a question in the survey instrument. Dissemination Products Formal evaluation reports Press release or issue briefs Promotional products such as brochures, posters, billboards, flyers, or videos Presentation (slide or poster) Peer-reviewed article Data collection tools Success stories/Lessons Learned Dissemination Mechanisms Email … 5.4.3    The makes individual national and/or combined datasets available to the scientific community by the Data Archive one year after the calendar year to which it relates. Disseminating data from multinational, multicultural, or multiregional surveys, which we refer to as ‘3MC’ surveys, can include specific processes, such as standardization, harmonization, and multi-lingual documentation, which may not apply to surveys done in a single country. 5.2     In order to provide optimal utility for researchers, produce a variety of products for varied constituencies. 3.6     Undertake both practical and statistical steps to identify cases and variables. Disseminating research in journals t … 9.1.4    Remember that there may be a need to disseminate findings several times, as new information is collected and updated. {2265844:NUAM2PXP};{2265844:THXKPNFI};{2265844:Y3GGKRR2};{2265844:WYYYNFA5};{2265844:56MZPUKP};{2265844:YQSMJYNV};{2265844:C54KDRPS};{2265844:TRE6EAUS};{2265844:NUAM2PXP};{2265844:4WUEFGS3};{2265844:WHW7WN2P};{2265844:NQWRR77B};{2265844:KHEHZKZY},{2265844:5CZRAUYN},{2265844:J6UQIBY9};{2265844:H77SEMSI};{2265844:ZR3KYVCE},{2265844:5DB6L8RD};{2265844:8I7528QG};{2265844:YBDU6ZXY};{2265844:F97XKZL7};{2265844:88BMWBK6};{2265844:73YJ2YAE};{2265844:U7PGAXS9};{2265844:56MZPUKP};{2265844:WFHIMYSQ};{2265844:Y3GGKRR2};{2265844:WYYYNFA5};{2265844:56MZPUKP};{2265844:TRLIEN7U};{2265844:TRLIEN7U};{2265844:WYYYNFA5};{2265844:77MUVBVK};{2265844:Y3GGKRR2};{2265844:YQSMJYNV};{2265844:WHW7WN2P};{2265844:LH34UMPN}, Study Design and Organizational Structure, Interviewer Recruitment, Selection, and Training, Data Processing and Statistical Adjustment. The establishment of links to the documentation of related surveys (e.g., those conducted in other countries) with variable text viewable in the native languages assists analysts who want to study relationships among all of the survey items. Send newsletters/articles or reports to local and national government representatives. 10.4   Test archived files periodically to verify user accessibility. Some examples include: 5.10.1  The project integrated a subset of data from the Demographic and Health Surveys for women of childbearing age and their children from 18 countries. There are also a number of issues for NSOs and other providers and collectors of data to consider as they formulate and implement Rockville, MD: Agency fo… Any information, content, or conclusions on this website are Committee members who had participated in research studies were concerned about the lack of accessible findings and developed the above points in order to address dissemination needs. Data and documentation may be disseminated in various formats, but the goal should be to provide complete information in a non-proprietary format that is amenable to long-term preservation. 8.3     For 3MC surveys, provide complete information about how the survey was conducted in each country or study population, and describe specific procedures and practices involving data collection and data processing activities. This tool was developed to help researchers evaluate their research and develop appropriate dissemination plans, if the research is determined to have "real world" impact. Contact your funding programme for advice. This section of the chapter discusses dissemination in terms of presenting results of the study and considering who will use the information and why. developed content. This guide provides an overview of how to create a professional, eye-catching, and valuable brochure. Explore how research results from cross-national surveys can be disseminated to as many participating countries as possible. Disclosure analysis has become increasingly important as more and more datasets become available online and as the possibility of linking survey data to other contextual and administrative databases has grown exponentially . 5.10   Create special subsets of data that take advantage of the longitudinal richness of long-term collections and provide unique opportunities to study important social, political, and economic issues from different perspectives, particularly with regard to the changing characteristics of the sampled respondents. Funders want to ensure that their money is spent in the best way possible and Phone: 1-800-270-1898 Prioritize contacting agencies that aided with participant recruitment and/or serve the target population. The creation of question banks, comprising all items asked in multi-year studies, years items were asked, differences in question wording, and so on. 7.3     Hold training workshops in different countries to ensure that novice users have a chance to learn about the data from experts and, if possible, from the data production team itself. 7.1     Organize workshops at relevant professional organizations or attend conferences where 3MC research is a focus soon after the data are released in order to bring early users together to discuss important preliminary results, as well as to ensure that the data are used effectively and that any problems with the data are recognized and corrected. Relevance to clinical practice. Version control is necessary for users to replicate previous analysis or to test analysis done by others. Consider disseminating research findings. Policy Cooperative Agreement). IDA, a nonprofit organization, promotes research and information dissemination to the community and to the public. There are many datasets that would be of interest to secondary analysts if the analysts only knew about them. Dissemination is essential for uptake, and uptake and use of research findings is crucial for the success and sustainability of practice-based research networks (PBRNs) in the long term. 7.2     Maintain a presence at professional meetings even after the data have been available for a long time. 1.4     Consider including information about the survey process when disseminating data, documentation, and reports. Relevance to clinical practice. 5.2.3    Clearly identify the master version and provide access to any previously released versions. Usage. Research has the potential to influence US social policy; however, existing research in this area lacks a coherent message. A review of data producers’ mission statements, dissemination policies, and experience around the world underlines the importance of and reasons for giving access to microdata files. Research Dissemination; Dissemination Plan Examples; Dissemination Plan Template. 6.1     Create a robust search engine to query the fielded metadata so that the user can find variables of interest efficiently. In some cases, even after dissemination, the ownership of the data remains with the principal investigators. 8.1     Keep detailed records from the very beginning of the project and make every attempt to record important project events at the time they occurred. 4.4     Consider the creation of less thoroughly masked versions that can be distributed under restricted-use contracts or made available within a research data center or ‘enclave’ (i.e., a secure environment in which the user has access to restricted data and analytic outputs under controlled conditions). Dissemination of research findings is becoming more important for scientists, since journals start to encourage them to invest extra effort in reaching wider audiences. 1. XML marked up information gets its full potential when coupled with a database management system and powerful front end tools. In countries were national data archives do not exist, data producers may want to partner with university social science departments or research centers to increase awareness and use of important datasets. Data on the desalination market are compiled and managed mainly by the International Desalination Association (IDA) and the Global Water Intelligence (GWI). Several aspects of making data and documentation files available to analysts require special consideration. 2.9     If possible, work with a trusted digital repository, such as a national or public social science data archive, to preserve all study materials. 6.4     Dedicate staff time to continuously searching journals and online databases to discover new citations where the data have been used. 8.4.1    Define a database structure that will be used to store XML elements. 10.5   Establish procedures early in the survey lifecycle to ensure that all important files are preserved. 9. Dissemination can be powerful when adding rhetoric or other forms of persuasiveness to the speech. Toolkit, How to A checklist is provided to guide agencies in developing a comprehensive Web dissemination system. • Supports dissemination of evidence-based strategies to improve health • Research conducted at UW-Madison or Marshfield • Supports activities such as: • Targeted distribution of research findings , products or materials to a specific audience • Development of materials in preparation for dissemination and/or implementation activities Data producers and archivists must assure analysts that the data they provide accurately reflects the efforts of the data collection process, is trustworthy and fully documented, has no confidentiality concerns, and is securely preserved for future use. Research on dissemination addresses how information about health promotion and care interventions is created, packaged, transmitted, and interpreted among a variety of important stakeholder groups. Good user support will prevent obvious misuse or possible misunderstanding of the structure and content of the dataset. A tool that can be used to frame the objectives for dissemination, which will guide the materials that need to Research has the potential to influence US social policy; however, existing research in this area lacks a coherent message. 7.3     The Demographic and Health Surveys have an online user forum for users to post and discuss issues. 1.9     Many institutions which provide research grants for data collection now strongly recommend that grantees prepare a data sharing plan as part of the proposal process. 5.2.2    Consider disseminating data on removable media (e.g., CD-ROM or DVD) if appropriate. IFDO found that there was a growing awareness and interest in data sharing. Such files have been thoroughly checked and cleaned, possess uniform and consistent coding strategies, use common formats, and address the potential research needs of secondary analysts. 6.3     Display the abstracts of the publications with links to the full text whenever possible, in order to realize the full potential of the online research environment. The ‘no code in data file’ indicates either an interviewer error or error in data editing. dissemination. 10.10 Designate resources to provide user support and training for secondary researchers. This may include surveying users, conference presentations, and collecting user data. 3.2.1    Identity disclosure results from using a single identifying characteristic or a combination of characteristics to discover an individual respondent (e.g. Website Dissemination Planning Create an Effective Brochure Given the large number of participants, and rich phenotypic data, we are eager to disseminate the data and project findings in an engaging, innovative manner. While data producers are usually the people who best understand their data, they may not have the resources or desire to provide ongoing user support for the research community. Users doing analyses will appreciate that all ‘does not apply,’ ‘don’t know,’ ‘refused,’ and ‘no data available’ responses are coded the same way in the data file. 6. 1.7     Documentation for the World Mental Health (WMH) Survey is done using the Survey Metadata Documentation System designed by the WMH Data Collection Coordination Centre . Disease Research, Bangladesh (Icddr,b) and the TRAction project in Dhaka and the Dodowa Health Research Center of the Ghana Health Services as well as Ayishatu Gibrin and Najoua Kachouri for their contributions in organising the pilot workshops. Determining who is using the data and why is important to consider as part of a comprehensive dissemination strategy. 8.4.2    Identify appropriate tools that will access and create XML-coded information in a natural language environment, such as a browser displaying a Web-based form generator. Different dissemination strategies may need to be employed in different countries/cultures. A research study is not complete until the study findings have been disseminated via presentations at professional forums and published in a peer‐reviewed journal and where appropriate recommendations regarding how the research findings could … Data sharing allows scientists to expedite the translation of research results into knowledge, products, and procedures to improve human health. Dissemination Planning To ensure that the project results will be used, research projects must develop a dissemination plan that explains how the outcomes of the Additionally, the tool helps the user allocate resources to achieve the dissemination objectives. The event was a collaboration with engage@liverpool at the University of Liverpool on 12 Sept 2019. – – – Example modules include ‘Religion,’ ‘Role of Government,’ and ‘Leisure Time and Sports’. Presenting research findings, in addition to making the data files available to other users, is an important step in quality dissemination practices. Consider archiving collections in one archive, which would keep master copies of files in several locations but minimize the possibility of conflicting versions of data and documentation files. As with study participants, consider the language needs of the community. Research activities supported by public funding are rarely considered complete until the results have been made widely available. Ask participants if and how they would want to receive results. It concluded that more accurate and reliable statistical information is now being produced by more nations than ever before, but also recognized that dissemination mechanisms are not fully developed in many locations. 3.3     Implement a disclosure protocol. 10.1   The in the United States worked with other federal agencies to do a study of Web-based systems for the dissemination of health data, and produced a Guide for Public Health Agencies Developing, Adopting, or Purchasing Interactive Web-based Data Dissemination Systems. 7.2     Complex data sets often require specialized training. 7.3.2    These training courses can be brief half-day or one-day sessions at the time of professional meetings, or they can continue for longer periods (e.g., three- or five-day sessions with a more detailed focus). 9.1.1    Include presenting findings in the study’s initial budget. Nations also have internal challenges and constraints in addressing dissemination goals from resource constraints, shifting priorities, and their ability to generate periodic and timely statistical data. Data dissemination is the distribution or transmitting of statistical, or other, data to end users. electronic format , CD-ROM and paper publications such as PDF files based on aggregated data. This will assist analysts in understanding the goals and purpose of each survey. 5.4.4    Living Standard Measurement Study Survey (LSMS) data are usually available within twelve months of the end of fieldwork and are published on the World Bank website for the LSMS study, as well as each country’s statistics office website. To assist in developing these approaches, we created a practical framework drawn from the literature on dissemination and our experiences disseminating evidence-based practices. How to disseminate your research: Getting your message heard - and used This guide is for researchers who are applying for funding or have research in progress. This includes, but is not limited to, original unedited (raw) data, fieldwork documents, metadata, and population statistics for coverage and response rates. Such steps include: 5.1     Address the various ways data may be utilized by creating tools within a Web-based system that permits online analysis, subsetting, and access to documentation. 2.2     Some earlier studies, such as older Eurobarometer surveys, did not preserve individual country data, and thus issues about harmonization emerging some decades later could not be easily settled. 5.2     Be very clear about coding responses that refer to ‘item response refused,’ ‘item response does not apply due to filtering,’ ‘can’t choose all,’ or ‘don’t know,’ and especially ‘no code in data file where a code should be.’ All these have different meanings and must get different values. 4.1     Make data files fully available to the research community as soon as possible, within the confines of how the project is organized and financed. This section of the chapter discusses dissemination in terms of presenting results of the study and considering who will use the information and why. 1.8     Countries participating in the World Values Survey are required to submit documentation of their survey methods and data to a central data archive no later than three months after fieldwork has been completed. Participating in the development and promotion of digital preservation community standards, practice, and research-based solutions. Organization(s): Agency for Healthcare Research and Quality, Access to Care for Rural People with Disabilities Consider digitizing physical objects, commonly-used questionnaires, or other administrative materials documenting the whole data lifecycle, including the design phase of the project. those of the authors and should not be construed as the official position or policy of, nor 5.6     Standardize all missing data values, unless it is not possible to do so due to different cultural understandings (flag such issues carefully). 1.10   The conducted an informal Web survey of institutional data policies in the social sciences in 2013. Since dissemination policies may differ among countries, it is important that data producers take the necessary steps to make their collections as accessible as possible to members of the research community. The Fund published a report about the success of this initiative over the first ten years of the initiative. Create comprehensive training, outreach, and user support programs to inform the research community about the dataset. intellectual property issues. An additional aspect of dissemination is how to share research findings with interested parties. Ensuring that digital content can be provided to users and exchanged with archives without damaging its integrity. National partners are responsible for either the scanning or storing of their own questionnaires. 2.3     Protect digital materials through storage of multiple copies in multiple locations. Some examples include: 8.1.1    The Demographic and Health Survey provides their questionnaires and manuals via their website. The presentation of instrument documentation, so that users can track the logic of the questionnaire. © 2020 The authors of the Guidelines hold the copyright. Processors should perform a series of steps to ensure the integrity and maximum utility of public-use files. 8. © 2002–2020 Rural Health Information Hub. This section of the chapter discusses dissemination in terms of presenting results of the study and considering who will use the information and why. 5.1     Users increasingly expect data files to come in a variety of formats that will work easily with their statistical package of choice. 5.4.5    Survey of Health, Ageing, and Retirement in Europe (SHARE) data are distributed through their Research Data Center. What are the 5 components of data dissemination? Consider how your dissemination might be perceived by different groups. GWI is geared toward industry, investors and stakeholders in water management. Consider multiple methods, including newspaper articles, radio, and TV news, in order to reach many people. The peer-reviewed and grey literature was systematically reviewed to understand … The Model for Dissemination of Research provides a framework through which to synthesize lessons learned from research to date on the process of translating research to US policymakers. 5. This is particularly important if removable media (i.e., tapes) are used for storage, since formats and the machines required to read these media change quickly over time. 5.7     Create complete and concise variable and value labels which will provide researchers with clear descriptions of their analytic results. 9.1.2    Create a team which will organize and create dissemination materials. dissemination of research. An advance briefing is offered to top policy makers in the executive and legislative branches of participating countries; immediately thereafter, results are released publicly to the national and international media, civil society, and donors. 1.11   The has produced guidelines for access to research data from public funding. 10.6   Create digitized versions of all project materials whenever feasible. 2.7     Investigate the protocols and standards of digital repositories, such as availability of extracting data and in the areas of multi-site storage, security, and costs. Data may be disseminated publicly without any restrictions (as public-use files) or only to certain users under specific conditions (as restricted-use files). A proper disclosure protocol includes an analysis of the most likely outside sources which might allow for the identification of respondents or households. These may incorporate data protection plans, formal licenses, and travel to a special facility at which researchers can access the data in a very controlled environment. Data users may be policymakers seeking summary information, analysts browsing for new data sources, or individuals seeking summary analytic information or wanting to quickly download specific variables. Dissemination of additional types of data, such as quality or benchmarking data, can be equally important in advancing the evidence base to support nursing interventions and … The key goal of disclosure risk analysis and processing is to ensure that the data maintain the greatest potential usefulness while simultaneously offering the strongest possible protection to the confidentiality of the individual respondents. Dissemination of research. Dissemination of research findings is an important part of the research process, passing on the benefits to other researchers, professional practitioners and the wider community. Evaluate if research results have potential to impact policy. 1. Develop finding aids to guide users in their quest to locate data collections they want to use. Impact activities and dissemination may therefore be ongoing throughout the research lifecycle (including these later stages) and members of research ethics committees should have the necessary skills and expertise to ask critical questions when assessing a proposal's impact and dissemination … The Model for Dissemination of Research provides a framework through which to synthesize lessons learned from research to date on the process of translating research to US policymakers. Data Dissemination . These are inspired by the knowledge café organised by the Social Research Association North. More is involved in the dissemination process than merely providing data access to interested researchers. should any endorsements be inferred by HRSA, HHS or the U.S. Government. A study analyzing data across 3 countries found that factors making it easier to disseminate research findings such as a unit/department/school with a formal communication dissemination strategy were rarely available. the dissemination objectives. Presenting research findings, in addition to making the data files available to other users, is an important step in quality dissemination practices. Similarly, data from the World Mental Health Survey is available to policy makers in participating countries . Toolkit, Services Integration Make quality control an integral part of all dissemination steps. 1.1     All studies must develop a system for preserving and storing materials. This may include salary, translation, printing, mailing, and/or meeting costs (see Tenders, Bids, and Contracts and Translation: Management and Budgeting). 6.1     Data usage increases when the data are easy to find and when users know of publications scholars have produced from the data. Wider adoption of evidence-based, health promotion practices depends on developing and testing effective dissemination approaches. The results indicate that the social sciences have more developed policies than the medical and health sciences. Responsibility for the views expressed and for any errors of fact or judgment rests with Margaret Dissemination is a key responsibility of a statistical agency. The availability of microdata is often dependent on national laws and regulations. • Supports dissemination of evidence-based strategies to improve health • Research conducted at UW-Madison or Marshfield • Supports activities such as: • Targeted distribution of research findings , products or materials to a specific audience • Development of materials in preparation for dissemination and/or implementation activities Document Many international organizations, social science data archives, and survey research projects also embrace these objectives. In disseminating qualitative data, researchers have an array of presentational styles and formats to choose from that best fit their research purposes, such as drama, dance, poetry, websites, video and evocative forms of writing. In order to ensure that researchers have access to the greatest amount of data possible without compromising respondent confidentiality, data producers, when appropriate, must make every effort to create both public- and restricted-use data documentation files, and make these files available to the research community through secure and predictable channels. Once the dissemination objective and the audience are identified, there are a variety of ways to share the High-quality documentation is essential for effective data use in all surveys, but particularly in 3MC datasets, because of the need to provide comparable information from all countries or study populations. 5.4     Established 3MC studies share their data in a variety of ways: 5.4.1    The publicly releases all data and documentation via their website, one year after the completion of fieldwork. These users may include government officials, academic researchers, policymakers, and the general public. Potential audiences and effective methods include: 9.2.2    Community members/target populations: 9.3     Consider the ethical and legal policies within each country and culture. 10.9   Provide data files in all the major statistical software package formats and test all content thoroughly before they are made available for dissemination. A tool that can be used to frame the objectives for dissemination, which will guide the materials that need to be created and the method of dissemination. It aims to help governments, research support and funding organizations, research institutions, and researchers themselves in dealing with challenges in improving the international access and sharing of research data. The most straightforward way to reach out is to develop an effective online presence, ensuring that the data are easily located and acquired and that metadata and bibliographical citations are also available. 8.1.2    The produces an annual survey documentation report, as well as a report summarizing fieldwork and any deviations for each round. 3.1     With the enhanced emphasis on privacy in almost all countries, confidentiality reviews of microdata are increasingly important, if not indispensable, to assuring the future availability of public-use data. 3.1     Be aware of, and adhere to, the different legislation for disclosure control in each country. Think about what the risks are to your dissemination plan e.g. Dissemination Products Formal evaluation reports Press release or issue briefs Promotional products such as brochures, posters, billboards, flyers, or videos Presentation (slide or poster) Peer-reviewed article Data collection tools Success stories/Lessons Learned Dissemination Mechanisms Email … Prevention Toolkit, HIV/AIDS Prevention and Treatment Toolkit, Prevention and Treatment of Substance Use Disorders 10.2   Consult with institutions, research associations, and analysts to develop appropriate quality standards. After having decided on which variables present unacceptable risks, mask the relevant information. Name at least 4 purposes for data dissemination. The Rural Health Information Hub is supported by the Health Resources 10.7   Develop specific procedures for assessing disclosure risk to respondents, and execute these procedures whenever public-use files are produced. 3.3     The practice of reporting examples of privacy violations, particularly in the healthcare field in the United States, has increased awareness of this issue . Participants also have the option to donate a DNA sample. Making the attempt to disseminate results in this way provides more benefit to those who funded the research project, and encourages discussion about the strengths and weaknesses of the original data. Establishing communications message, defining the audience, selecting the communication channel, marketing the message, evaluating the impact .
2020 dissemination of data in research